Blake’s Story: Medulloblastoma

Share

Blake knew he was in the right hands the moment he saw the surgeon’s wrists. Dr. John M. Tew, Blake’s neurosurgeon, was wearing one of Lance Armstrong’s yellow LiveStrong cancer bracelets. So was Blake. Dr. Tew, who was also sporting a Tour de France lanyard, was an avid cyclist. So was Blake.

The two cyclists hit it off immediately. “It was a perfect match,” Blake recalled.

In a story that only gets better, Dr. Tew was able to successfully remove a malignant tumor, four centimeters in diameter, from 18-year-old Blake’s brain. A year later, Blake was cycling again and enrolled as a freshman in college. Although still battling fatigue, he had largely pulled his life back together. Deeply religious, he also found himself facing his future with a new appreciation for his life, his abilities, and the family and friends who surrounded him. And in the years since, he has evolved into a global humanitarian, with trips abroad to underserved areas. He spent a recent summer In Cairo, Egypt, living and working in a garbage slum called Mokattam. He also worked with the Sisters of Charity (Mother Theresa’s sisters) in an orphanage, where the sisters called him “the baby whisperer.”

Blake plans to enroll in law school in the fall of 2010.

When you experience something like a brain tumor, Blake reflected, “you’re more grateful to be alive, whereas you would have taken it for granted before. When you’re 18 and healthy and fit, you can feel pretty much invincible. But when you realize, hey, I almost died there, you become a lot more grateful.”

An honors student and a Category 2 cyclist capable of racing at speeds of 28 miles per hour, Blake was living an active, successful life when the tumor began making its presence known.

“I had these headaches that lasted two to four weeks, basically beginning in February 2004,” Blake recalled. “I had them off and on, the worst headaches I’d ever had. Then, the week before we discovered the tumor, I experienced really bad balance. I was standing up and I fell over for no apparent reason. I had double vision in my peripheral vision. They did an MRI and found the tumor.”

Blake, who lives in Dayton, Ohio, was sent the same day to the University of Cincinnati (UC) Neuroscience Institute. Radiologists in Dayton recommended that Dr. Tew, a Mayfield Clinic neurosurgeon who had chaired UC’s Department of Neurosurgery from 1982 to 2002, perform the surgery. Blake’s father felt an instant connection: a physician himself, he had trained under Dr. Tew in the late 1970s during his residency in emergency medicine.

“When it turned out that, amazingly, Dr. Tew was available for Blake’s surgery, it was another of those faith-building times for our family,” Blake’s mother said.

The connection between patient and physician was immediate as well. “Dr. Tew is really good at what he does, and he’s very caring on the personal level,” Blake said. “I’ve heard that a lot of prominent surgeons are very caught up in themselves. I don’t see Dr. Tew as being caught up in himself at all.”

The respect was mutual. “Blake is a great young man with enormous courage,” Dr. Tew said. “He comes from a very loving, spiritual family, and he is beloved by all who know him.”

Following a second MRI, Blake was given steroids to reduce hydrocephalus, an abnormal increase of cerebrospinal fluid in the cranial cavity. He went home for two days, then returned for surgery, which was performed August 2 at University Hospital. Before the operation, in a moment Blake’s mother would not forget, Dr. Tew spoke with the family in the waiting room. “When we told him that many people were praying for Blake and him, he took our hands and said, ‘Let’s pray.’ There in the waiting room we prayed together! What a blessing!”

During the surgery Dr. Tew used computer-driven, image-guided technology, a global positioning system that facilitates precise navigation in vulnerable areas of the brain. The computerized system enabled Dr. Tew to track his surgical instruments and the tumor (located in the fourth ventricle in the cerebellum) in three dimensions on a high-resolution screen. Using a high-powered microscope, Dr. Tew performed microsurgery and removed the tumor in its entirety. The tumor was a medulloblastoma, a malignant tumor that arises in the cerebellum, especially in children. The cerebellum, located in the back of the brain and next to the brain stem, is involved with posture, motor coordination, and balance.

The next day, a Tuesday, Blake couldn’t roll over without excruciating pain. But by Friday he was able to get onto his bike, with a little help from his father.

Blake believes that his faith helped carry him through the ordeal. “I always had faith in God, but that faith became much more personal following the surgery,” he said. “The best way I can put it is that it wasn’t that real to me before. I felt I could handle life on my own. I was successful at most everything I did — bike racing, looks, and brains. I felt I didn’t need any help. But after the surgery I couldn’t do anything for myself. I couldn’t feed myself, walk, or write. So I definitely needed a lot more help over these past few months. I’ve grown a lot closer to God because I relied on him more  — I had to because I couldn’t do things on my own. I wouldn’t wish a brain tumor on anyone, and this wasn’t what I would choose. But God used it for the ultimate good.”

In August 2005, just a year after surgery, Blake rode in a 30-mile cancer benefit and then completed the Davis Phinney Foundation’s 25-mile Sunflower Revolution bike ride, which benefited Parkinson’s research at The Neuroscience Institute. During the Sunflower Revolution gala, Blake joined former Tour de France cyclist Davis Phinney in presenting Dr. Tew with an award in front of a crowd of 400 people.

“I lost my composure, which is a very rare occurrence,” Dr. Tew said. “I was blessed to be in the midst of love and God’s messengers.”

Blake’s story, Dr. Tew said, is one of the most inspirational ever associated with his career. “I can’t read about it or think about it without tears.”

This entry was posted in Hope Stories and tagged , , . Bookmark the permalink. Both comments and trackbacks are currently closed.
  • Print This Page
  • Make an Appointment: Schedule Now
  • UCNI Weekly Blog
  • Hope Stories

    • John’s Story: Glioblastoma

      John's Story: Glioblastoma John, a retired painter and carpenter, is a tall, solidly built man with a strong inclination toward getting things done. A former Vista volunteer who was equally comfortable running a food co-op in an underserved neighborhood or standing near the...
    • Sandra’s Story Glioma

      Sandra's Story Glioma Sandra (Sandy) is a smiling, breathing reminder that hope exists for patients with even the most challenging type of brain tumors. Nine years ago, when Sandy was first told that she had six months to live, she stared back blankly...
    • Kevin’s Story: Acoustic Neuroma

      Kevin's Story: Acoustic Neuroma Kevin was in his mid-40s when he began to notice that he wasn’t hearing quite as well as in the past. But the change was gradual, so he didn’t worry about it. A few years went by, and the hearing...
    • Dr. Mike’s Story: Glioblastoma

      Dr. Mike's Story: Glioblastoma Sixteen months after receiving a diagnosis of brain cancer, Dr. Michael Wood continues to attack his disease with wellness. In addition to surgery, radiation, chemotherapy and strong family support, the 61-year-old Cincinnati otolaryngologist has worked hard to provide his own...
    • Jim’s Story: Pituitary Tumor

      Jim's Story: Pituitary Tumor One turn of events led to another, and so it was that Jim, and not his wife, took Jim’s 87-year-old father to his appointment with the dermatologist for the first time. And so it was that the dermatologist was not...
    • Jerry’s Story: Spinal Tumor

      Jerry's Story: Spinal Tumor On an ordinary day in February 2009, John M. Tew, MD, got one of the true surprises of his career. He was seeing patients in his Mayfield Clinic office on the University of Cincinnati medical campus when an unexpected guest...
    • Brian’s Story: Meningioma

      Brian's Story: Meningioma “Carefree” is the word Brian uses to describe his life back then. He was 39 years old, happily married and the father of three children under the age of 5. “Life was busy, but that felt normal,” he says, reflecting. “The only...
    • Blake’s Story: Medulloblastoma

      Blake's Story: Medulloblastoma Blake knew he was in the right hands the moment he saw the surgeon’s wrists. Dr. John M. Tew, Blake’s neurosurgeon, was wearing one of Lance Armstrong’s yellow LiveStrong cancer bracelets. So was Blake. Dr. Tew, who was also sporting...
    • Bob’s Story: Glioblastoma

      Bob's Story: Glioblastoma Bob’s story blends coincidence with collaboration and hope. The coincidence involves the 62-year-old West Chester man’s best buddy, “Jake,” a 165-pound...
    • Lynne’s Story: Brain Metastasis

      Lynne's Story: Brain Metastasis Semiretired and working part-time at a restaurant, Lynne knew something was amiss when she looked at the cash register and then struggled to make her hands produce the correct amount of change. Could she have suffered a stroke? Lynne pushed the...
    • Joe’s Story: Oligodendroglioma

      Joe's Story: Oligodendroglioma Joe calls it a miracle and a gift from “a higher power.” Others might call it a fortuitous turn of fate. Either way, Joe’s experience embodies a reversal of fortune that is both wonderful and startling. Once a man with...
    • Doc’s Story: Metastatic Brain Tumors

      Doc’s Story: Metastatic Brain Tumors First there were headaches. Bad ones. Migraines, probably. Then, one day in mid-May, 2010, his knee, foot and arm went numb on his left side. Darrell “Doc” Rodgers, the 700WLW radio personality, feared he was having a stroke. In the emergency...